Sadie Week and the Second Annual National Williams Syndrome Awareness Week


I’ve been pretty slack on the blogging lately, which is entirely due to the fact that I have been busier in the past 6 months than I think I have ever been in my life. Most recently, I’ve been busy with all the usual (work, kids, life, trying to find time to sleep), as well as planning the Second Annual South Carolina Walk for Williams!

Our walk last year was a huge success, and this year is looking like it is, yet again, going to blow all of our expectations out of the water!

To celebrate the walk and National Williams Syndrome Awareness Week, I’m going to continue the tradition I started last year here on my blog and dedicate an entire week to our precious little girl, who I lovingly call “Sadie” (due to privacy concerns) on this blog.

Welcome to Sadie Week!

Sadie Week - Walk for Williams

Over the course of the next seven days, I’m planning to share more information about Williams Syndrome and how it has affected our lives. Last year, I tried to write about our experiences living with Williams Syndrome, and about our thoughts on the future of our daughter and our family, but it was honestly just too hard. I’m still not entirely comfortable discussing the future with anyone, and still can’t do so without crying, but it is something that I really want to address. Hopefully, I’ll be able to get through writing that post this year.

So, to kick off “Sadie Week,” I want to include some links to last year’s posts. I think they do a great job of describing what it was like for my family to go through the diagnosis, and how it was for us in the beginning.

May 10, 2010
Sadie Week and the First National Williams Syndrome Awareness Week
A little about Williams Syndrome and some adorable pictures of our sweet girl

May 11, 2010
Sadie Week – The Diagnosis
Part One of my thoughts and memories of getting the diagnosis

May 12, 2010
Sadie Week – Learning to Fly (or just…be)
Part Two of the diagnosis, Welcome to Holland, and the beginning of our changed life

May 14, 2010
Happy Birthday Sadie!
Repost of Sadie’s birth story, in honor of her 3rd birthday

May 16, 2010
An Amazing End to an Amazing Week
Brief recap of the walk

If you only have time to read one or two of those posts (or maybe half of one, since I couldn’t order a cheeseburger in 500 words or less), please consider reading the May 10th post to learn more about Williams Syndrome. The emotional one is the May 11th entry.

Sadie Week - Walk for Williams

South Carolina Walk For Williams Syndrome

If you would like to participate, attend, or learn more about the South Carolina Walk for Williams, you can visit our walk website here.

Please consider making a donation to the Williams Syndrome Association in honor of our sweet little girl and the South Carolina Walk for Williams. A donation in any amount is greatly appreciated, and will directly benefit individuals and families living with Williams Syndrome. Here are links to the three online fundraising campaigns that were created in our daughter’s honor:
South Carolina Walk for Williams online donation page
Campaign created by her uncle
Campaign created by The BFF
Campaign created by us, her parents

* And please note that names are changed for privacy…sorry to be so confusing and all double-o-seven wannabe on ya.